Alzheimer’s Association Releases Statement on Reagan Movie

29 Apr reagan-ronald

reagan-ronald

STATEMENT:
RE: RONALD REAGAN MOVIE

APRIL 29, 2016

CONTACT: Alzheimer’s Association, 312.335.4078, media@alz.org

You can attribute this text to Harry Johns, Alzheimer’s Association president and CEO.

“The Alzheimer’s Association is appalled that anyone would plan to develop a film that satirizes an individual living with Alzheimer’s or another dementia. Would filmmakers consider using a fatal form of cancer or another deadly disease for comedy? It’s time to stop this forever.

“The idea that a film depicting President Ronald Reagan’s Alzheimer’s, or anyone with dementia, as a comedic device is offensive. More than 5 million Americans are living with the disease, and their 15 million family caregivers provide support every day. This disease is not a joke. In addition to its devastating impact, it is fatal. The Alzheimer’s Association will rally against anyone who marginalizes the devastating and deadly impact of Alzheimer’s disease.

“President Reagan and his family were champions in raising awareness about Alzheimer’s disease and the need to fund research for its cure. The Alzheimer’s Association and our advocates will continue to work to ensure all those living with this disease have the care and support they need while striving toward our vision of a world without Alzheimer’s.”

About the Alzheimer’s Association® The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research, to provide and enhance care and support for all affected, and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer’s. For more information, visit the Alzheimer’s Association at alz.org or call the 24/7 helpline at 800-272-3900.

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Articles on this subject can be found here and here.

Cycling for The Longest Day

27 Apr

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Terry Miller’s brother Jerry decided to use this summer to remove one item from his bucket list, and cycle/camp across the country from the Atlantic (Neptune’s statue in Virginia Beach) to the Pacific (San Francisco), and Terry decided to join him for the first week. Terry’s father, Jack W. Miller, passed away this past October from complications from Alzheimer’s, and he thought The Longest Day would be a good way to raise money for The Alzheimer’s Association, and to honor his father. Below is Terry’s adventure in his own words. If you would like to create your own adventure or honor your loved one, you can register for The Longest Day to raise funds and help #ENDALZ.

First off, I want to thank everyone that has contributed the Alzheimer’s Association for the Longest Day. I also wanted to catch you up on how the trip is going.

On Saturday we got down to Creeds and were told my a Virginia Beach police officer that the Knott’s Island ferry would be down for a couple of days because the high winds had pushed the water out of the sound. My kind and lovely wife cancelled a pedicure and dinner with friends to rescue us. We ended up spending Saturday camping in a Econolodge in Elizabeth City.

On Sunday we made it to Gatesville, in.spite of very strong winds, where we camped out in the woods in a county conservation area. 36 degrees overnight. Perfect for hammock camping . Oh, and no cell phone service to speak of. That didn’t prevent my cell phone from turning itself back on and killing the battery. No handy 115 volt trees to plug it into either.

It warmed up quickly on Monday, and we met some very nice people at a deli that had just closed up from their opening day in Severn, NC. They gave us ice, water, and some very good cheese biscuits left over from lunch. They took pictures of us looking really great from a hot sweaty day on the road. They said they wanted to tell about our fund raiser on their Facebook page.

Monday night we camped out in the woods off the road between Severn and Margaretville. Haven’t they heard of cell phone service out here in the country?

On Tuesday we got an early start, crossed I-95 and made it to Gaston for a long lunch and use of the only outlet in Hardee’s dining room to charge the phone. I got to send off some thank you emails for donations before leaving with full stomachs, charged batteries, ice, and water. Jerry also got caught up on his on-line journal.

We spent Tuesday night near Eaton’s Ferry on the south side of Lake Gaston. Pretty uneventful, bet we were able to hand wash our laundry, but it didn’t dry overnight, so we bungeed wet clothes to the top of the trailer with the erroneous though that the sun and wind would dry it all out. Ha! Anyway, we hit the road at 8:35 this morning, after a 30 minute delay due to mechanical problems caused by pilot error.

The trikes and trailers have done so much better than the legs, especially with all of the hill climbing around Lake Gaston. It does seem to be some kind of unwritten rule that whatever you need at any particular moment is always at the bottom of the trailer hamper.

We had lunch Wednesday in Warrenton, a very pretty town just east of 85. Another Hardee’s. Don’t these little towns have Chick-filet?

After lunch and a long ride in the country we crossed 85 and ended up at Nutbush Creek Camp Ground on the southwest side of Kerr Lake. A real campground with hot showers and indoor plumbing! First thing we did was put up a clothesline for all of those clothes that were already supposed to be dry. A nice dinner of bagged tuna and Rice-a-Roni, the San Francisco treat. Hammocks set up, and off to bed to send emails.

Met a nice couple at the campground, They are semi-retired documentary makers, and are currently working on a documentary about what happens to young adults that graduate out of the foster care system. Got out of camp fairly early, and put in some serious up and down mileage (up takes a lot longer than down) to Roxboro, NC. We saw lot of pretty scenery, not much car and truck traffic, which is good. We stopped for pizza at lunch at a little country store that seem to be at a lot of state highway intersections. We came across one of two of these every day, and stopped at all of them, if only to get water. I am carrying three 25 oz water bottles, and they don’t last a whole day.

We are averaging 40 miles per day, which isn’t as good as I thought we would, but is pretty good considering that we are towing trailers full of clothes, camping gear, and food. Since we are camping wherever we find a patch of woods at the end of the day, we need to be self contained. We even stop to get water in our solar camp shower’s toward the end of the afternoon, and strap it to the top of the trailer to warm up. Four gallons of water makes the trailer just a tiny bit heavier.

We spent the night in Roxboro at an America’s Best Value Motel, with the emphasis on value, not on best. We went to Budget Inn originally, but it looked a little to budgety, and we forgot our body armor.

The America’s Best has free Wi-fi, but it won’t even register on SpeedTest. The iPad and Jerry’s computer keep saying “no internet connection”, so we ended up using my phone as a hot spot again to get to the outside world. On the subject of America’s Best Value, their free breakfast includes your choice of Coco Crispies, Captian Crunch, Fruit Loops, or Frosted Flakes (well, the generic versions), and coffee. Sorry, they just ran out of milk. We walked across the street to Sheetz and got breakfast. Sheetz sets the standard for mediocrity, but it was food.

Thunder storms were predicted for early morning, and, while we remembered our rain suits, we forgot our lightning suits. The rain came in at 9:00 am while we were deciding on whether to try to move forward or stay for the day. It’s going to get worse as the day goes on, according to radar, so it looks line a day cooped up in the motel. There is a laundromat next door, so Jerry is braving the rain to get our clothes really clean and dry.

We have met some very nice people along the way, especially Cheryl at the newly opened Main Street Diner in Severn, who gave us the food, water, and ice.

You can still make donations to Terry here.

We have met some very nice people along the way.

Thanks again for all of your support,
Terry Miller
Mid-Atlantic Business Communications (MABC)

What are YOU going to do for The Longest Day?

12 Apr

TLD Tuesdays_WhatAreYouGoingToDo-01We are less than 90 days away from The Longest Day. Are you still not sure about what your activity might be? Here are some activities others in your community are doing. As you can see, it can be just about anything. Simply do what you love to do while raising awareness and funds to help those who are living with the challenges of Alzheimer’s every day.

  • Baking
  • Playing Bridge
  • Golfing
  • Hiking
  • Cycling
  • Cooking
  • Hosting a dinner party
  • Knitting or Crocheting Circle
  • Fitness Exercises
  • Reading
  • Watching television
  • Showing movies in their home
  • Chili cook-off at work
  • Backyard BBQ
  • Fishing tournament
  • Hosting a board game party

So there you are. It’s really that easy. The possibilities are limitless. Choose your favorite activity, register at www.alz.org/tld, ask friends and family for donations, and then GO FOR IT!

ABOUT THE LONGEST DAY
The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.

Fundraising ideas at the office

5 Apr

TLD Tuesdays_ideasForWork-01

So you think you can’t participate in The Longest Day because you’re going to be at work on June 20th? And it’s a Monday to boot. Not to worry! Make it a FUN Monday with one or two of the following ideas.

  • Become a personal vending machine. Purchase some office favorite snacks in bulk (or have them donated) and sell them from your desk for $1 or $2.
  • For a donation, co-workers are entered into a drawing to win prizes like casual days, prime parking spots, free lunch, gift certificates, etc.
  • Sell cookies, cakes, candy, popcorn, muffins, etc. for donations.
  • Have a chili cook-off. Each entrant pays an “entrance donation”. The winner of the cook-off wins a prize.
  • Miniature Golf Putting Contest. Set up putting greens around the office and charge a fee to play.
  • Team up with a local restaurant for a fundraising happy hour. Many establishments will donate a portion of the proceeds from food and drink to the cause.

These are just a few ideas to get you started. Ask your co-workers for suggestions. You are limited only by your imagination to turn just another work day into a FUN Monday!

Join or Register a team now!

ABOUT THE LONGEST DAY
The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.

Knitting/crocheting for The Longest Day

29 Mar

TLD Tuesdays_Knitting-Crocheting-01

knittingDo what you love. Love what you do.knitting

You’ve always loved to knit or crochet. Maybe you’ve tucked away your projects, thinking you’ll get back to them when you have more time. Or, maybe you’ve been actively knitting or crocheting for many years and are looking for a great project.

Well … now is the time and this is the project! Knit or crochet to raise awareness and funds to help those living with Alzheimer’s.

Here are a few ideas to get you started:

  1. Ask for donations for each hour of knitting or crocheting. Ex: $5, $10, $15, even $20 per hour. This can be done individually or you can ask your friends to join you in a knitting/crocheting circle.
  1. Offer to give knitting or crocheting lessons for donations.
  1. Sell items you have knitted or crocheted.
  1. Ask for donations for items you knit or crochet within a certain amount of time.
  1. Make up small baskets of yarn and ask for donations.
  1. Tie knitting or crochet needles together with a pretty ribbon and attach a small card to them. In the card write the name of a donor’s loved one who is either living with Alzheimer’s or who has been lost to Alzheimer’s.

You are limited only by your imagination! Do what you love and love what you do while putting your passion to good work on The Longest Day.

Join or Register a team now!

ABOUT THE LONGEST DAY
The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.

Volunteer Hampton Roads honors ALZSEVA Volunteer

23 Mar

Conducted annually, the Hampton Roads VOLUNTEER Achievement Awards recognize the region’s most outstanding volunteers based on their length of service, initiative and impact on the community.  These men, women and youth have inspiring stories that encourage others to serve. This year our volunteer Robert Fanning will be among the honorees at the 41st annual event on Wednesday, April 13 at the Founders Inn & Spa.

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Robert Fanning seen here in a t-shirt given to him by our staff for his 85th Birthday

Robert (Bob) Fanning, age 85, volunteers 15 hours a week at the Alzheimer’s Association Southeastern Virginia chapter, for a total of more than 4,000 hours since 2009. Bob is the most dedicated, conscientious volunteer any organization could ask for – he even comes into the office on snow days and holidays when the office is closed!

Bob has applied his problem-solving and analytical abilities to many tasks such as organizing the chapter library, making it easier for the public to access ; creating, editing, and printing a manual of local resources, which is distributed to more than 600 families annually throughout southeastern Virginia; and collecting constituent data and entering it in various databases and spreadsheets. An amateur photographer, Bob has ably recorded many chapter events and milestones.

But Bob is much more to our chapter than the sum of his technical skills. Bob’s wife Mary died of Alzheimer’s, which gives him the personal experience, compassion, and insight to provide wisdom to families dealing with the disease; he facilitates two monthly caregiver support groups and has told his story in person and on video to assist others navigating the same journey. Bob has taken an active part in the Walk to End Alzheimer’s for the past ten years, walking in memory of his wife and helping to raise funds to support research and programs.

Bob’s intelligence, kindness, and quick wit make him a valued part of our chapter family. He is a welcome part of chapter events and social occasions, and he is someone to whom staff members turn for support and counsel. Bob Fanning is a powerful role model for active, productive, engaged aging, and we are the richer for having him in our organization. We are so glad that he is being recognized and rewarded for his extraordinary dedication and service.
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If you would like to join in the celebration at the 41st Annual Hampton Roads VOLUNTEER Achievement Awards – Purchase Tickets Here

Wednesday April 13, 2016 at The Founders Inn & Spa
5:30 p.m. Cocktail reception, cash bar • 6:30 p.m. Awards ceremony and dinner
Tickets $50.00

Motorcycle Clubs: Fundraising for The Longest Day

22 Mar

TLD Tuesdays_motorcycleClubs-01

Are you a motorcycle enthusiast? If so, you’re the perfect fit for The Longest Day! You’re already involved in giving back to your community in so many ways. Turn your favorite activity into helping to raise awareness and funds for the care, support and research in Alzheimer’s. Here are just a few ideas.

  • SELL YOUR SPOKES Sell each of your spokes for $20, then tie a purple ribbon on each purchased spoke and include the name of the friend or family member that your donor would like to honor or support.
  • BARK AND BIKE WASH In between rides, have a bike and bark washing station. Offer bike, car and dog washes for a donation.
  • POKER RUN Host a Poker Run with proceeds going to your Longest Day Team. Consider a reasonable registration donation, Chinese raffles, 50/50 split, etc.
  • HAIR SHAVING/GROWING This can apply to heads of hair, mustaches, beards and goatees and can be done in various ways. For example, if you raise XX dollars, you have to shave your head, mustache, etc.; or, if you raise XX dollars you can’t shave or cut your hair for a month.You could also ask participants to dye their hair purple instead of shaving or growing.
  • DOLLARS FOR MILES Ask for donations based on the number of miles you ride. Ex: $5, $10, $15, or more per mile.

Whatever you choose to do, gather your friends, family and supporters at sunset to celebrate your accomplishments and to honor those living with the challenges of Alzheimer’s every day.

Join or Register a team now!

ABOUT THE LONGEST DAY
The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.

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